Student
Featured in Real Women of MS
Feature
written by Christi Chandler,
www.realwomenofms.com
The
first day of school is coming early this year for Addison Barksdale. It’s such
an exciting time for parents to prepare for the big day, but for Addison’s
mother, Shannon, the supply list reads much differently than: notebook, pencils,
crayons…
“Basically in order to prepare for
Addison’s first day of school we’ve been in speech therapy close to a year
now and we, of course, have to have her hearing aids ready as well,” Shannon
says.
This doesn’t sound like the average
Wal-Mart shopping list for back to school.
You see, Addison was born with an Enlarged Vestibular Aqueduct (EVA),
resulting in hearing loss so this month will be Addison’s first day of school
at Magnolia Speech School.
Our second daughter, Addison, was born on
October 15, 2008. I will always
remember the first time I held her in my arms, and I will never forget the day
we were leaving the hospital to bring her home.
My husband, Andy, our oldest daughter, Olivia and my parents were in the
room packing our bags, excited about bringing Addison home.
The neonatologist came into our room to release us and that is when we
learned that Addison did not pass her hearing test.
I think about what the doctor said often –
“I would not worry about this at all, it is probably just fluid in her ears. Bring
her back in two days and they will do another hearing test – this does not
happen to many babies that are born in THIS hospital.
I am sure she will be fine.” My
eyes filled with tears and my heart was so heavy with fear.
Please don’t let this precious and innocent baby have to face being
deaf.
I brought Addison back to the hospital two
days later, and she did not pass the test.
Two more days later we were back for her third test – and she did not
pass. We were referred to an
audiologist who would perform an ABR (Auditory Brainstem Response) test on
Addison. This is a test that uses
electrodes (wires) attached with adhesive to the baby’s scalp.
While the baby sleeps, clicking sounds are made through tiny earphones in
the baby’s ears. The test
measures the brain’s activity in response to the sounds.
I arrived early to our appointment with the
audiologist and gave Addison a bottle hoping that she would sleep through the
test. As she lay in my arms with
the electrodes on her tiny head, I fought back the tears and tried to find a way
to be positive. I could no longer
hold my tears when the audiologist told me that Addison did not pass the hearing
test. A part of me just knew that
she would pass her test. Every time
I closed the microwave door, she jumped. If
I clapped my hands, she would look. Why
didn’t she pass her test? What
did I do wrong? And what were we
going to do now?
The audiologist referred us to several
doctors, audiologists, speech therapists, Mississippi School for the Deaf, and Magnolia
Speech School. How were we
going to make all of these decisions? What
if we did not choose the right people to care for Addison?
I called a good friend, Dr.
Andrea Furr Lewis, who referred us to
Dr. Carron, an ENT at UMC, and Dr
Kathy Irving, an audiologist at UMC. We
made an appointment with
Dr. Carron and Dr. Irving. I
knew we were in the right place when we had our first meeting with them!
Dr. Irving performed another hearing test on Addison and again, she
failed. Dr.
Carron then met with us, went over the results and we decided that it would
be best to perform an MRI on Addison to try and find out what was causing her
hearing loss.
Addison was asleep in my arms at the
appointment and Dr. Carron asked if I thought she would sleep for 30 more minutes.
We decided to do the MRI and five minutes later my baby was laying on the
machine and her little body was going in that tunnel.
The fear was back. What
would they find? Would she fall off
the machine? Would she wake up
during the test and get scared? Why
couldn’t I fix this for her? The
test was over – she didn’t fall off the machine and she didn’t wake up.
Once in Dr.
Carron’s office and we learned that Addison’s hearing loss is due to an
Enlarged Vestibular Aqueduct (EVA). Basically,
EVA means that the channel connecting the inner ear and a cranial space has
become larger than normal. Currently, no treatments can reverse or stop the
progression of hearing and/or Vestibular losses from EVA.
Hearing aids or cochlear implantation may help.
Often the hearing loss will progress early in life, or progress may be in
a sudden sometimes resulting in deafness. To
reduce the likelihood of progression of hearing loss, individuals with EVA are
advised avoid contact sports, wear head protection when engaged in activities
that might lead to head injury (such as bicycle riding or skiing), and avoid
situations that can lead to extreme, rapid changes in pressure (such as
airplanes or roller coaster rides).
That day, when Addison was only two months
old, she was fitted for hearing aids. I
couldn’t believe it. This was
real. I cried for Addison many
times. Why did she have to wear
hearing aids? Were kids going to
make fun of her? Would she talk
funny? Would she look at her older
sister and wonder why she couldn’t be like her?
The unknown was, and is still, very scary.
We began speech therapy with Magnolia
Speech School at the beginning of last year, and what a blessing they have
been. Not only do they help your
child – they love and care deeply for your child.
Magnolia
Speech School
is such an inspiration to me, and I am thankful
that Addison is able to be a part of this wonderful school.
Addison is now a year old, and what a joy
she is! Her hearing levels have
remained the same as they were at birth and for that, I am very thankful. I do not know what the future holds for Addison, but I do
know that we can get through it with God and a strong support system of family
and friends. I am still humbled by
the care and concern we have received from our friends and family.
This time in my life has taught me that you have to face your fears, you
need your friends and family to help you – and there is no way you can get
through it without God. As long as God has a deep presence in your heart, you will
deep hope in your life.
Magnolia
Speech School exists to teach children with severe communicative disorders
to listen and understand, to speak and be understood, to learn and thrive.
They are committed to enabling every student enrolled to become
self-sufficient, independent and productive members of their community. Their
program’s objectives target each child’s deficits in communication and close
“the gap” that lies between them and their typical peers.
Shannon
Barksdale and her husband, Andy, have been married for six years. They attend
Meadowbrook Church of Christ with their two daughters: Olivia (3) and Addison
(1).
|